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Shopper's Beware
Caveat Emptor




   Escaped commieny  Response to GC: I am being treated for Marginal Zone B-Cell Lymphoma. I received the same diagnosis & treatment plan from three doctors. Bendamustine is the 1st line treatment recommended. Eagle Pharmaceuticals has the Exclusive license and patent to 2031, it is distributed by Teva for commercial activity in the US, resulting in NO competition or generic. This is only one of the 4 drugs in my chemo treatments. They sell it wholesale to the clinic, who in turn sells it to me retail, OK I guess that is capitalism, although the 60% profit seems excessive, it gets better, they sell it in bags for one-size-fits-all, so a 100lb person (me ) buys the same bag as a 300lb body, my left over can't be used for anyone else. The clinic charges my insurance over $30,000 a month. Well, July 8th was my 65th birthday, so the employer's contract w/insurance states, once you are eligible for Medicare, you are terminated. So, when I contacted the clinic, they said Medicare only covers $16,000 for the treatment. Believe me, I have spent 2 months researching everyone and everything. Made some enemies, tough. Ended up purchasing the supplement plan to avoid bankruptcy and government Penalties for non compliance and able to continue treatment. I am so PO'd, the last thing I want is the government involved, have had to fight with the VA for 46 years over DH's treatments, the whole reason we have paid through the nose for private, employer sponsored insurance plan. Stock Tip: buy stock in NASDAQ: EGRX it will be a money maker until 2031.
PS: My PET scan shows great improvement so I will continue to fight, research and be an advocate for others that are being ripped off. See my note below about the Lidocaine.
July 20 at 07:38 EST .



   Escaped commieny  O/T , Molly Mayhem, the 95 lb Lab, thanks you for the tip about Chewy, she has a new doggie bed. Nice company.
And, publish the name of the company that is ripping off patients, far and wide, glad you told the Doctor, he can confront the sales rep that pushes that stuff, maybe can get a 'free' sample from them if they want to keep the account. Latest fad seems to be 'shaming' so might as well use it for good.
July 20 at 07:58 EST .


   Grahamcracker  EC, I'm so sorry you are experiencing both a lousy disease and unrealistic medical costs to treat it. When one is so ill you don't need the added burden of hassling with insurance. The good news is your PET scan results! May you continue to improve. I will add you to my prayer list.
FYI, the cream Alcortin A, distributed by November Pharma, LLC, manufactured by Sonar Products, inc. Fortunately, I will not need this cream after this tube runs out. If it were a life or death situation, I would be up the creek.
Glad you like Chewy. They seem to be an A-1 company!
July 20 at 15:49 EST .


   Grahamcracker  Just re-read my comment. It isn' t November Pharma, it is NOVUM Pharma. Auto correct strikes again!
July 20 at 15:51 EST .


   Escaped commieny  Thanks for the prayers. I am doing very well, no bad side effects, just have to watch the platelets and white count is low, so no public appearances! I spend more time on research and paperwork.
I believe I reacted so well due to my diet, vitamins and supplements but the doc said don't take that stuff, eat what you want, well excuse me ! another thing I found out - nurses or docs that give out nutritional information rather than the poison treatment can be turned into the 'board' at some clinics & can lose their license. I did stop some that would thin the blood ( like niacin ) but stayed with some of my antioxidants and noninflammatory when my joint pain started and still the drugs did their job. She told me they would interfere but I listened to what my body told me. I am so glad you won't be needing that cream, buy gold it's cheaper !!! LOL I left the first clinic because of poor customer service and filed a complaint with the state, they still owe me for an overcharge. The reason I looked into being an advocate, was watching the crying patients and screaming spouses, I don't have a medical background but my career was in industrial research and degree in accounting, so I can help in those areas.
July 20 at 16:14 EST .




   Escaped commieny  I wish I could have thanked Balogreene for the Zulily site. Doctor was teasing me to find clothes that fit, so I ordered v-neck tunics for port access. with long sleeves to cover the chicken skin, and for the first time 'skinny' leggings. I didn't want to invest in expensive clothes because I plan on getting the weight back when done with this darn poison they call chemo. I found the quality just fine and price didn't break the bank. I miss her, we had birthdays just a month apart, and as Birdy said, her recipes were really different, some times I had to look up the ingredients!
June 23 at 08:21 EST .

   3 people like this.



   MeiDei  Ditto almost all the above - still look as if I'm 2 weeks out of a concentration camp - well maybe 8 weeks ; )
June 28 at 20:14 EST .

  3 people like this.



   Escaped commieny  took your advice for the port, but even after 3 months, it still hurts.
Doc says it is because I am skinny, the blasted thing sticks out and can't wear top 'under garments' so I wear wild hippy print tunics. Can't eat the things that would make me gain, cancer goes after sugar, 17X's what normal cells would use, so I eat nuts,berries and protein. PET scan tomorrow will tell if complete response vs partial or none. They will probably take 10, nail-biting days to tell me.
June 29 at 09:11 EST .

  3 people like this.



   MeiDei  Get a prescription for a tube of **Lidocaine, put a generous amount on port button, cover loosely w/bandaid about an hour or so before they access it .... should only feel slight pressure - no pain.
** about $7.00 for a large tube.
June 29 at 15:22 EST .

  4 people like this.



   Escaped commieny  Have to tell you a true story, appropriate for shopper's beware !!
Doc gave me a 'script for Lidocaine, Walgreen's emailed me for pickup, 2 tubes $89.00, and insurance won't pay, so I called UHS, they said we don't pay for over the counter . Can you believe it, I took my $6.99 receipt and the Walgreen email quote and gave it to my vampire girl to forward to the doc. Warned all who would listen.
June 29 at 17:23 EST .

  3 people like this.



   MeiDei  Good grief - prescription is stronger than OTC - my plan paid for all but $7.00 - every plan is different but that's ridiculous.
June 30 at 16:48 EST .

  3 people like this.



   Escaped commieny  Walgreen's Lidocaine 4 %, found some on Amazon at 5 %. My ins. oncology nurse said many patients use Calendula, so I am ordering that too. Local docs get their back up when I talk about my 'other' nurse, told them stuff it, they- the insurance- are paying your bills.
Great news, the PET showed great improvement so I know the MOTUS (blog Luci loves ) bunker and your prayers are working.
July 7 at 05:44 EST .

  4 people like this.





   MeiDei  "Echo" (and similar gadgets ) are moving into "must have latest fad" territory - if you are so inclined you may want to see if an app is available to eliminate all conversations (extremely intimate, nasty fighting, political or gossipy ) in the house from permanent residence (& retrievable by others, including govt. & law enforcement ) in the cloud. Evidently they don't just control turning on/off: lights, coffee pots, slow cookers, TV's, etc., locking/unlocking doors - privacy in the home is an unseen cost that may/may not be fixed by reprogramming.
January 15 at 09:32 EST .

   6 people like this.



   Mike PHX  I totally fail to see the attraction in these devices. "Device...cook me some eggs...
Oh...you can't."
Only the lonely, I guess.
June 22 at 22:00 EST .

  3 people like this.



   Escaped commieny  I don't have any 'smart' objects in this home, the day an object reports my actions, well....not going to happen.
June 23 at 08:26 EST .

  3 people like this.





   Balogreene  Don't know why I keep posting good things here, but, here is another success story. https://www.ebates.com/r/BLGRNE2?eeid=28187

A friend at work told me to try this. She checked her account, and over a couple of years, she's earned a couple hundred dollars back. I got $10 for joining and ordering. Then there were my Cubs championship t-shirts, a couple of Christmas presents, the cocktail dress (cringe ) for the work Christmas party, my sister joined from my recommendation,and bought Christmas gifts,. They sent me $10, and I have $50 more coming in Feb.

I shop a lot online, why not get paid a dollar or two a time?
November 2 at 19:38 EST .

   4 people like this.



   Tulsa  Do you and your sister know about Walmart Savings Catcher?

https://savingscatcher.walmart.com/

If you use a pc, you need to register with an email address as the ID and create a password. Login and then type in the receipt # and date. About 3 days later they email to say what, if any savings they found. You may claim it on a Walmart card any time up to $599. ??? I think.

There is also a Walmart app. I guess that's for phones. We don't use cell phones, but it's all explained at the website under Faqs or ask someone in the store. ..sorry I can't help with this part. ..I think you can just send a picture of the receipt if you have the phone.

We're over $13.00 and it's not only easy and fun, but cashing in and using it towards purchases will be a big perk.

Walmart grocery is compact and complete and less than every item we purchased from Kroger. We're in and out in short order.
November 7 at 10:44 EST .

  5 people like this.



   Balogreene  I have about $75 beats since October. Granted, I bought Christmas presents, which added up. And I haven't left the house.
December 2 at 12:15 EST .

  3 people like this.



   Jerico  I did this but I got creeped out by some entity knowing what I purchase. Maybe I'm overreacting. Anyone else feel this way?
December 3 at 05:59 EST .

  4 people like this.



   Tulsa  Jerico, b4 Walmart, we were Kroger shoppers (both stores approx a mile from the house ). Kroger sent coupons based on what we purchased.

I buy cat liter. We don't have a cat. I pour it on the street if a truck has an oil leak. Cat liter has several handy uses.

Between the Feds, our ISP (surfing and phone records ), our Bank credit and debit cards, voting data (which is public record ) our tv viewing habits, there is no privacy. So I don't care.
December 10 at 16:21 EST .

  4 people like this.





   Balogreene  This week Sis and I put orders in to Boxed.com. Sis says we will drop our Sam's club membership because Boxed covers most of what we buy there. She gets meat at Walmart, because there are more varieties, and produce, because at Sam's you get way more than we eat in a week. You just go online, place your order, and it is shipped to your door. If you get enough it is free shipping. The huge problem is getting those heavy boxes into the house. We tip them on end, then tip them into the house, and push them along the floor, and empty them.
October 22 at 11:11 EST .

   5 people like this.



   Balogreene  By the way, they only have name brands, so there are some generics we will still buy at WalMart. We are just dropping Sam's Club.
November 2 at 19:40 EST .

  4 people like this.





   Tulsa  We wanted to try the Persil, Pro Clean liquid detergent Walmart is advertising. ...only place it's sold. Prior it was only sold in the UK. Made by the Dial Co., I believe. We bought the white liquid for sensitive skin after smelling the regular in the store. The sensitive skin flavor is still too perfumed, but dissipates after drying.

We have both developed dermatitis. Don't know if it's the scent, chemicals or both, but do not recommend it.
August 28 at 11:27 EST .

   6 people like this.



   Balogreene  We use the pods. I like it better than Tide, but, we have no allergies or sensitive skin.
October 16 at 17:02 EST .

  4 people like this.





   Balogreene  A response to MeiDei. Ive gotten a lot of stuff from Zulily.com. I keep looking these things up, and zulily was recently appropriated by QVC. You still have to be careful, there are no returns. But, if you watch the sizing etc, they are good quality, and nice looking clothes.
August 4 at 19:01 EST .

   6 people like this.



   MeiDei  Thanks for the QVC mention, Zulily has some attractive offerings, glad you're happy w/them.
August 8 at 19:51 EST .

  4 people like this.





   Escaped commieny  A few years ago, Flaming Sword recommended RestockIt.com. I use them for FoodSaver bags, t-Paper, paper towels and when free shipping-heavy liquid cleaners like PineSol and Dawn. I was reminded to mention they were a good place to purchase, when DH just came in the room and asked if I realized 'we have more toilet paper than Venezuela'
July 15 at 16:03 EST .

   5 people like this.




   MeiDei  To go along w/my post below - see the horror stories of on-line purchases
http://enthralling.eu/36-moments-when-online-shopping-go-hil
ariously-wrong/
June 30 at 18:12 EST .

   4 people like this.




   Escaped commieny  Bad experience with Wayfair.com. May 1 st, I placed and order for 3 items. The Hamper came needing assembly, but it took 2 people not one. OK, it's a nice looking piece of furniture. Second item was a pair of drapes with stitching missing, called received a credit, the kicker was the third item - a bed-in-a-bag set with skirt. I received an email with a tracking number that it was shipped May 5, when it hadn't arrived by the 13th, I called, OOPS it didn't make the truck it is still in the warehouse, we will get it right out. Then I got an email saying it was discontinued.
At that point I placed my Amazon Prime order for much better insulated drapes, a comforter bed in a bag, nicer and less expensive, was all here in 3 days. After repeated calls to Wayfair they finally credited my Discover card May 21st. Bah Humbug on Wayfair.
June 11 at 18:54 EST .

   3 people like this.


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